Okay so I saw the Pain Management Clinic today.
First of all, one doctor talked to me for a while and though the neuro said he “diagnosed” me, this doctor was like “No, there’s obviously something wrong here. He labeled you with the ‘I don’t know’ diagnosis because of your wide range of symptoms. Which is also what Fibromyalgia is. It’s probably multiple pain diseases we’re yet to understand, so we call them Fibro. Or, sometimes, Central Pain Syndrome, like your doctor did.”
But he (and the second doctor who evaluated me, I had two today) both are of the opinion I have something, and I need to keep looking for it. They’re curious as to what the Rhuematologist will say, and what the Autonomic testing will yield. They think it’s a high possibility I do have POTS and it’s likely I have some kind of autonomic (involuntary) nerve or muscle disorder riding along with it. Which, this isn’t the first time this has been said to me. But my testing isn’t until February so uh yeah
In the meantime, I’m in a shit ton of pain. Daily. So. They are inducting me into something called an Interdisciplinary Pain Management Program. Next Thursday, I’m going back and they’re going to do a series of evaluations and tests with me, a pain management physician (looks like I have two), a nurse, a psychiatrist, a psychological counselor, and a physical therapist that’ll take about two and a half hours, then I leave, and from there they do a round table discussion about me to decide which EXACT program I need to do, set it up, then I’ll be going to this med school every week, twice or more a week. For a while. They said we won’t know how long until we get going, it depends on how well my body reacts to things, and really whatever disease I have.
But it’ll consist of physical therapy, medication, procedures, pain counseling, and anything else I might need. They said depending, they may call in doctors from other specialties to help out. And I’m really willing to try what the fuck ever if it helps. Cause it’s getting worse, and I can’t do anything about it on my own.
Both doctors though kept saying “KEEP GOING TO YOUR APPOINTMENTS, THIS IS NOT A CURE, THIS IS JUST TO IMPROVE YOUR QUALITY OF LIFE.” And they also told me, they’re going to try and look for an answer while I’m doing this. But for me not to EXPECT one. Which, I think makes sense. Maybe someone will actually look at my legs, that’d be amazing.
It’s quite a place. And they seem like they really want to help me. So. Yeah. Should be interesting.